ALF Rare Disease Summit
ALF will bring together rare liver disease stakeholders – patients, caregivers, hepatologists, primary care providers, patient advocacy organization personnel, and industry representatives – for a four-hour virtual Summit to identify solutions for improving the health outcomes of individuals with rare liver diseases. This meeting will focus on answering the following questions:
- How can people avoid misdiagnosis/achieve earlier diagnosis?
- How can we educate more people about genetic testing and best address concerns about stigmatization?
- How can we reduce the patient burden and improve the overall patient experience?
- Can telemedicine play a role?
EVENT DATES: Tuesday, June 28th and Wednesday, June 29th
TIME: 1pm-3:30pm EST